Bittersweet Love
Ingredients
1 Amazingly Precious Baby
1 Nebulizer
0.5mg/2 ml Budesonide
Directions:
1) Pour Budesonide into Nebulizer. 2) Hold mask over Amazingly Precious Baby's face 3) Turn on Nebulizer 4) Listen to Amazingly Precious Baby cry, while you continue to hold mask over Amazingly Precious Baby's face. 5) Once Budesonide is gone (approximately five minutes) take mask away from Amazingly Precious Baby's face 6) Turn off Nebulizer. 7) Enjoy some of the sweetest hugs and cuddles from Amazingly Precious Baby.
Can anyone guess we saw the Pulmonologist today? It was our scheduled two month check up. I was glad to report that Rayne has had some improvement. She isn't squeaking, she can play on the floor on her back, and she is sleeping much better on her belly. But we are still having some feeding difficulties, and general noisy breathing. Upon check in the nurse noticed that her weight gain isn't what it should be. What was her weight you may ask?? 11lbs 3oz, for you statistics buffs that hits just below the 3% line. So this of course was the main concern of the doctor, because she will grow out of this condition but she has to GROW for that to happen. Dr. Mahesh asked about her eating habits and I told him we were still doing 100% breast-milk in bottles and although we do have some feeding troubles she takes 27-30 ounces a day. Dr. Mahesh agreed that she was getting plenty intake, she must be spending too much energy breathing. Which not only makes it hard for her to grow out of her condition but it could delay other milestones as well. So how do you get a baby to grow? Make it easier for her to breathe of course. My heart jumped for joy that this doctor was more interested in treating the cause and not a symptom. Because I'm sure there are some doctors out there that would have told us to switch her to formula to fatten her up and assume the breathing problem would go away after that. I don't like those folks. So the medical supply company ran over a nebulizer for me, it took ten minutes for them to get to the doctors office, it was awesome not to have to go pick it up. We left the doctors office with a nebulizer, a prescription and a follow up appointment in three months.
After Rayne's nap we sat down to do the very first treatment. It wasn't the funnest thing in the world but it wasn't too bad either. She didn't care about the air or the noise but the Budesonide does sting which made Rayne uncomfortable. But as soon as the Budesonide was gone she was back to being all smiles. She wanted to be cuddled but she still was smiling away.
Overall this treatment is suppose to help ease her airways so it is less difficult to breathe and more energy can go towards growing. It of course will take some time but it is better than some other options and most certainly better than nothing.
That is the report for now.
PS- The mask has froggy eyes on it, that's just the one the delivery guy picked up. it was like it was all meant to be :)
1 comments:
I'm glad that the mask has froggies on it. That must put you at ease a little bit. Do you just have to do once a day? Five minutes a day isn't too bad, I guess.
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